Austin Woman’s PCOS Support Group Sheds Light on Hormonal Disorder
A flourishing PCOS support group in Austin, initiated by a woman with a long-term battle with the condition, is boosting awareness about the hormonal disorder and forging a strong community. Stephanie Tollett, diagnosed with Polycystic Ovary Syndrome (PCOS) at 19, spearheads this Austin-area group, which currently encompasses over 550 women.
PCOS is a hormonal condition often starting during adolescence, potentially causing hormone imbalances, cysts in the ovaries, and irregular periods. According to the World Health Organization (WHO), a staggering 70% of women with PCOS remain undiagnosed, while the condition is projected to influence up to 13% of reproductive-aged women.
The Devastating Impact of PCOS
Problems associated with PCOS extend far beyond the physical sphere. Those affected by this condition are more susceptible to diseases like Type 2 diabetes, hypertension, high cholesterol, heart disease, and endometrial cancer. Psychological impacts include possible anxiety, depression, and negative body image.
Although there is no single cause behind PCOS, Tollett emphasized the importance of achieving an early diagnosis. While no known cure exists, treatments like certain medications, the use of birth control, and lifestyle changes can potentially alleviate symptoms. However, due to the broad range of symptoms, comprehensive diagnosis can be challenging.
Austin Area PCOS Support Group: A Beacon of Hope
Tollett’s response to the pressing need for solidarity, community, and information led to the birth of the ‘Austin Area PCOS Support Group’ on Facebook. Launched around a decade ago, today the group boasts over 550 members and serves as a platform where those with the diagnosis or those suspecting they have PCOS can share experiences, discuss treatment options and offer support to one another.
“It’s scary, but you are so worth getting checked out. You’re so worth knowing what’s going on so that you can take steps now,” Tollett said.
A Rally for Advocacy and Awareness
As the founder of the support group and a PCOS sufferer herself, Tollett encourages women to engage in those hard conversations, not waiting for symptoms to exacerbate. In her mission to foster greater advocacy, she believes that women should insist on receiving the necessary attention if their concerns aren’t addressed seriously.
In support of PCOS patients, Tollett stressed, “No one knows your body. The doctors know the body. They don’t know your body.”
Tollett’s motion complements the efforts of the PCOS Awareness Association in offering additional information and resources for those diagnosed. With September recognized as PCOS Awareness Month, the campaign for improved diagnoses, treatments, and support systems are more relevant than ever.